Alex is running again!! It's been about 5 months since Alex has been running so it was a surprise to come home this afternoon to find Alex gone. He decided he wanted to go to the school and attend the track and field team practice. Instead of taking a taxi or bus to the school, he ran up and down the trails behind our house to the school. If you have ever gone from Repulse Bay to Tai Tam on the trails you know it's not a simple little run or hike. Not bad for a first outing after all the chemo he has been through. Tomorrow it's back to the hospital for blood counts. Hopefully counts will be high enough to start his first maintenance treatment later in the week. He's hoping to time things so he can go see the team race on Wed and join friends for the opening night of Iron Man 2 on Friday. I guess that means chemo on Thursday! Now if only his counts will cooperate!

Alex,Ryan and Bryan

Great news yesterday!! Alex's PET CT scan showed "no evidence of residual disease" and "no pulmonary embolism (was) found". It came back all clear so he is I guess "in remission" although no one used that term yesterday. We thought he would begin Maintenance chemo after the weekend as i thought his counts would rise to where they needed to be. We were close after the last blood count but yesterday's counts dropped. The nurses said that was normal and that he probably hadn't "bottomed out" yet. It takes a while for the counts to sort themselves out. So we'll do counts again on Tuesday and go from there. The nice thing about delaying the start of maintenance is Alex doesn't have to take any medication while he is waiting. And he is completely off the blood thinning injections!! It's a nice little break.

On Thursday, our school, Hong Kong International School, hosted St. Baldrick's Day. It's an event where people volunteer to shave their heads and raise funds for childhood cancer research. Students, faculty and staff and even some parents participated. Several of Alex's friends and his former Kindergarten teacher, Cristy Dratz, shaved their heads to raise money. It was a great event and we were touched that many people shaved and donated in support of Alex. I have posted some photos and will post more as I get them.

Once again, thanks for all of your love, support and most of all, prayers!!!!!! We have not traveled this journey alone. We know that our Heavenly Father has been with us every step of the way and that our burdens have been lifted by our Savior Jesus Christ who bore our pains and our sorrows.

Well today is Alex's 18th birthday! It's been a good day. The sun finally came out. It's been so gray lately here in HK. Alex celebrated his birthday with friends at Dylan Nisky's home. It was great to see him spending time with his friends.

We were expecting Alex to begin his Maintenance treatment last week but his counts had not recovered to the necessary levels. I guess we misunderstood and thought that he would start a week after his last IV chemo treatment. The doctor said that it was normal for counts to drop quite a bit at this point and it was necessary for him to recover before beginning the next phase. It's been a nice break for Alex not to have any chemo whatsoever for the last week. After the last IV dose, he still had oral chemo up until last Monday.

Tomorrow we will go in for counts and for a PET CT scan to make sure everything is clear including his blood clot. He stopped taking the blood thinners yesterday and if the clot is gone, we are done!!!!

Over the weekend Alex learned that he was awarded a full tuition scholarship to BYU. He was very excited about that. Everything is falling into place for college. One of the stipulations of the scholarship is that he must take at least 14 credit hours per semester. Alex is a little concerned that he may not be able to handle it if he is still having chemo. Since we haven't started maintenance yet, we don't know how he will be affected by it. The monthly lumbar punctures may cause spinal headaches for a few days so we will see.

A few of Alex's friends including Ryan Carlson will be shaving their heads this week in support of childhood cancer research. Pretty amazing since these boys will be bald for prom and graduation. They have formed Team Alex and are raising funds for St. Baldrick's. https://www.stbaldricks.org/teams/mypage/teamid/67657
Alex's kindergarten teacher, Cristy Dratz is also shaving her head in support of Alex and St. Baldrick's. Thanks Cristy, we love you!

We are finally done with Intensive Chemo!!!! It's been a long and intense six months.

We have been to the hospital 10 out of the last 12 days!! Alex will begin the maintenance phase of his treatment next week. The doctor said they will do a PET CT scan in a couple of weeks to make sure there is no sign of cancer. He still needs to be on the blood thinner until after the scan. Alex wants the port-a-cath removed but the doctor here suggested we do that back in the US as it is not something that is done regularly here. I was surprised to hear him tell me that, but I am glad he was honest enough to suggest it.

The main thing now is to get Alex over the nausea. He is so sensitive to the medication and the whole psychological thing (anticipatory nausea) makes it difficult to treat. Most people do not have any nausea in maintenance so we hope that is the case for Alex.

In the meantime, Alex still needs to be careful as it will take a few weeks for his counts to come back up and for his immune system to be back up to where it should be. He's looking forward to getting back into shape. You should see his legs. I wish I had his legs....so skinny!!! But he would prefer some muscle tone.

We have been so blessed through this journey thus far. The peace that our faith brings has been incredible. I have felt the presence of my Heavenly Father every step of the way!!! Your prayers, good wishes and positive thoughts have carried us through and the numerous acts of kindness have made going through this so much easier. Rarely have Alex and I had to make the journey to the hospital alone. Both in Utah and here in HK, people have insisted on taking us to our appointments (even when taxi's here in HK are plentiful). The notes, phone calls, yummy treats, flowers and gifts have been such lift to all of us!!!

Continue to join us in our prayers for Alex as we are not entirely done with the journey, but at least the hard part is done!!